6 month follow-up

Well, I should have posted this a few months back.  I finally went for my 6 month follow-up visit with the psychologist doctor that administered all of my ADD assesments.  He was very impressed with my follow through of the laundry list of things I needed to take care of first. 

I am currently taking OmegaBrite Omega3 capsules and have been since September.  They seem to mellow out my anxious edgy-ness.

I had a sleep study done in October and they found nothing profound as far as my sleep habits except that I have a hard time falling asleep.

I’ve tried 3 SSRI’s since Sept. and they all made me WAY more anxious, low sex drive and totally unmotivated.  I’ve read about this happening in Dr. Daniel Amen’s book “Change your Brain, Change your life”.

So, in conclusion, my doc agree that yes, I do have ADD.  I’m totally at peace with it now.  I’m actually relieved to know more about myself and why I’ve always had hard time keeping a schedule and severely distracted as a child.  Thankfully my grades in school were fine until I got to college.  Well, after I changed my path of study from a medical/linear type major to a creative/hands-on major – it was a big A-HA moment for me that I am a hands-on visual learner.  It’s really nice to know that and have it confirmed.   

I am back on Adderall XR and it definitely helps me organize, prioritize and feel like I can try to keep up with the rest of the world.  I’ve always felt like everyone else knew something, some key ingredient about life that I didn’t know.  Of course, I know that’s not true.  But when you have ADD – most days feel like you keep trying to “catch up” with stuff, life, work, kids and marriage that it’s a up hill battle everyday.  It can be exhausting.

I’ve also just found an Adult ADD support group in my area that is free!  I’m so excited to be a part of this group.  Many of us have college degrees, some of us have Master’s degrees and I believe one or two of us have Ph D’s!  So – we are smart people, we just learn differently.  Modern society seems to only accept one type of learning/teaching in the college level, at least for now.  Hopefully someday that will change.

still here

I’ve been pondering going back to work again full-time.  Just feeling as though being a stay-at-home Mom most days isn’t working for me anymore.  But, it’s still a thought to ponder – a very important, needing to be well thought out – thought.

Well, today I met with a psychiatrist about getting back onto some type of medication for my General & social anxiety and also my depression.  This woman does not have a very warm personality – or have any of the psychiatrists i’ve met.  She easily prescribes – which is a bit scary.  She was not at all interested in my final results of my ADD Assessment.  She is from a different clinic than my psychologist and I don’t know if she agrees with all of the testing that I had done, but we both agreed that even though I exercise regularly and eat right – it’s still not enough to keep my anxiety/depression at bay.  I will continue to exercise and eat well, but I think I also need a little boost.  I have to admit, I am not happy about having to go on any type of medication for mental health reasons, but a part of me is also relieved that I don’t have to battle this all alone.  I think I’ve been anxious and depressed at least most of my adult life… and I’m soooo tired of it.

So – today I’ve decided my new full-time job is taking good care of myself.  Why is it so hard as a Mom to put yourself first?  I don’t know.  I just know that it’s been a long time coming for me.  My husband told me last night that I need to do this – he even said “If I look stressed or cranky about you leaving to go for a run, just remind me that you need it to stay healthy (mentally & physically)”.   He knows how I am when i don’t get my exercise.  My head could start spinning at any moment – remember the movie Exorcist?  Yikes!

I am also starting a beginning ceramics class one night a week through our local community education and I can’t wait!  It will be my night away – something just for me.

Why can’t life just be easy?  Happy and carefree with no drugs involved?

Final Follow-Up results

I will start off with a baffling statistic that my doctor told me about yesterday.  

The Mayo clinic has done research on children that were treated successfully with ADHD stimulants.  Out of the study, 25% of those kids actually had a sleep disorder instead of ADHD.   

Does that surprise you?  It surprised me.  If they were treated successfully with stimulants, then don’t they have ADHD?  Well, the stimulants helped them during the day to stay alert and more focused because they weren’t getting the deep sleep or regular sleep cycles they needed at night.  These kids were damn tired.  My doctor said these same kids will be 5x’s more likely to have a chemical addiction sometime in their life because they were treated with possibly addicting stimulants when in actuality – they had a sleep disorder instead.  If I were a parent of a kid being treated for ADHD – I would get my kid in quickly for a sleep study.  What have you got to lose?  

Can you see where i’m headed here with my own ADD issues?  Yep, that’s right.  After all this testing the doctor determined quite a few findings and because of a few discrepancies - they don’t add up to ADD.

Here is what he found:

1. My brain wave scan showed that the back of my brain showed Delta (or sleep waves) and that I was either highly doped up on drugs/alcohol OR that I may have a sleep disorder.  (well, having kids will do that to you.)  I rarely use alcohol and never use drugs, so the latter is probably true.

2. The center of my brain showed major Beta (or anxiety/concentration) waves, but he said my ratio of Beta 1 to Beta 3 was WAY off – so I have a very, very overactive brain!  Therefore stimulants are not for me.  The neurologist reported that it showed anxiety, excessive worry, rumination and vigilance.  

3. My body is taking a big hit physically from all the Beta activity because it can mean high anxiety, fight-flight-freeze, and major levels of cortisol, hormones, and adrenaline are being released too easily because of how I am wired.  All of this is affecting my major strengths – Visual memory and attention.  Not good.  I can’t even draw enough from my strengths because of all this Beta activity buzzing.

4. I tested very high on the depression/anxiety scales – he was very concerned about that and wants me to seriously consider going back on an SSRI.  I’m not so fond of that idea, but i’m going to really think about it.  He says that I don’t have enough feedback from other adults – I don’t have a feedback loop and that my world is getting smaller and smaller.  It’s a social anxiety thing and I know it.  

5. My IQ showed that I am highly intelligent (thankfully) and that I have “learned well” – up to my IQ’s potential.  He said that if it was ADD – that there would be a difference between my IQ and how well I learn new things.  My biggest strength was in the visual memory category.  Weaknesses were Auditory processing and a possible math learning disability.

 

Some of his recommendations (and I will be getting a 15-20 page written report with all of this info) is:

1. starting a regimen of high quality Omega 3’s – he suggested the brand Omega Brite, as it is manufactured in a facility using nitrogen and each capsule is individually sealed for optimum quality.

2. Purchasing a little biofeedback machine from a company called Heart Math.  It’s a little portable machine that I can use when I am stressed or anxious that will give me feedback and retrain my brain to not release the fight/flight/freeze response so easily.  The model of the machine is called “EM Wave”.   Go to www.heartmath.com

3. Daily excersize to even out my anxiety and moods.  He said that there’s a great book out by John Ratey called “SPARK”.  It talks all about excersize and how it does what NO drug can do.  For people that do have ADD – it helps you wake up your brain and focus and for those of us with Depression/Anxiety – it calms us down to help us focus.

4. I need to make an appointment to have a Sleep Study done to see if there is anything else going on with my sleep patterns/cycles that have nothing to do with being up with children at night.

5. He recommended that my husband and I both read another book called “Brain Lock“.  It explains how people with the Singulet issues in the brain (where you have a hard time switching gears and moving from one activity to another) can overcome and learn how to unlock those gears.  There is a process in the book, step by step on how to do it and my husband needs to read it too – so he can try it with me.

6. He wants me to get some Cognitive Behavioral Therapy – learning how to retrain my brain to not crave negative thoughts for stimulation.  Supposedly some brains that are sleepy look for stimulation.  Unfortunately positive thoughts are not stimulating enough, but negative thoughts are – so my brain has been on a beating frenzy for years telling myself that I’m stupid, a fuck-up, etc… nice, huh?  He said he was reviewing and going over and over my forms, records, etc and he said that he just couldn’t understand why I was so damn hard on myself, that I couldn’t accept that my brain was wired a little differently and that I just needed to accept a little help.

7.  He recommended that I look for a volunteer position where I feel confident and could do something that I really enjoy.  I said ART would be great – so I am going to look for a volunteer position where I can maybe help out kids with disabilities with art.  He wants me to do this about 3 hours/week.   I need to expand my “feedback loop”  so my social anxiety doesn’t get worse.  I fear that one day  - I may not ever want to leave the house – thankfully I’m not there yet, but I could see how that might happen.

 

I’m sorry if I’ve disapointed those of you that may have been following my blog, but hopefully you can gain some insight from it.  You may have ADD, or you may not.  Seriously consider a sleep study before going on any meds.  

My doctor never mentioned ADD during the whole appointment, so at the end I finally asked “So, does all of this add up to ADD??”  - and he said no and explained all the reasons why.  He felt I wasn’t lacking in dopamine in my brain’s frontal cortex and also because of my IQ vs. how well I learn  - there wasn’t enough discrepancy.  Also, the neurologist has a ‘marker’ for ADD and I didn’t fall in that category afer she reviewed my brain wave scan.

But he said a lot of my symptoms/behaviors ARE consistent with an attentional disorder.

I have a lot of work to do … and it’s overwhelming, but I am satisfied with the final outcome and I hope that I can implement these changes and that I will be able to see a difference in my life.

I’m supposed to go back to the clinic in 6 months and they will test me again on attention to see where I’m at.

If you are interested in learning more about the clinic I went to – shoot me a comment and I will forward the information off in an email.  

tomorrow is the big day…

tomorrow, Thursday August 14th, I finally have my follow-up for my full Adult ADD assessment.  I am a little nervous and a little bit excited.  I think my fear is that maybe they will say after about 12 hours of testing on memory, achievement & IQ, learning disabilities and other qualities that are often found along with ADD – that they didn’t find anything.  In that case, it will solidify all the mental beatings I’ve been giving myself all these years and telling myself that i’m stupid, a mess-up, etc… 

but i don’t think that will be the case.

I have a feeling they will tell me this:  (I’m writing this because I want to compare what I think – to what they are going to tell me in my appointment tomorrow)

That i have Innatentive type ADD (as most girls/women with ADD)

That I have a math learning disability.

That I have problems with short-term memory.

That I have an auditory processing disability.

That I have low-grade depression or disthymia (sp?)

That I may want to consider medication for social anxiety.

 

That’s it.   THAT’S IT???!!!???   I know, crazy as it sounds… I think I function exceptionally well in today’s society if all of those things are an issue.  I was able to complete college in a hands-on, creative degree program (because i’m a visual learner) and have held down a few professional jobs for quite a few years before quitting to stay home with my kids.

My husband will be coming with as an extra set of ears because it doesn’t take much “talking” to overwhelm me and then my brain shuts down.  I am also scouring the internet tonight looking for a good digital voice recorder that I can bring to record the whole 90 minute appointment.

I will report back either tomorrow, or the next day.  :)

ADD Assessment – part two

So – the other day I went for my second of 4 appointments for my Adult ADD Assessment.  It was very interesting to say the least.  They had me doing numerous neuropsych screens to determine if at some time in my life there were any neurological problems … i.e. mini strokes, etc.  I’ve never had any concern that this was the issue, but it was part of the whole assessment and I guess it’s good to have it ruled out.

During the neuropsych screen I had to do things like repeat back a tapping rhythm and sticking out my tongue in three different positions as quickly as possible for 10 seconds – yeah, that was strange and the test administer prefaced it as “this is going to seem strange, but bear with me”… but I think I passed that part with flying colors.

After the neuropsych screen, I then moved on to memory testing – having to remember a drawing and re-drawing what I remembered at 3 different points during the appointment.  I don’t even remember half of what I had to do that day – how ironic, huh?  The last few years I have noticed a big decrease in my memory.  It really scares me a bit.  I can ask my husband or kids a question and then two minutes later I ask the same question again.  I think the problem lies within my short term memory.

There were a ton of math equations and word problems.  I feel as though I bombed those… fractions, square root stuff and more… thankfully I know I answered what the symbol for Pi was … 3.14.  I attempted quite a few fraction problems, but I am not confident that I completed them correctly.

At one point I sat with headphones on and the CD test they had me listen to had me repeat back sentences by the narrator, but at times during that test, there was background noise – like people talking…my downfall.   Then the narrator said 2 different sentences at the same time and I had to repeat back the one that I heard from the right ear and vice versa with the left.  My brain was completely fried after that test.  I had to concentrate really, really hard to hear the sentences above and beyond the background noise.  It was like being at a busy restaurant with my husband and trying to focus on our conversation – I get SO distracted, that he used to think I was eavesdropping on other peoples conversations, when in fact, I just couldn’t focus with all the background noise and was squirming in my seat!

I go back again on Tuesday for a QEEG Screen that will test/measure brain waves.  This is a bit controversial at the time because there is research that shows ADD brains look different than non-ADD brains.  I think there are a lot of non-believers in this form of testing for ADD.  

I figure that all bases are being covered with all of this testing that I am going through – and the best part of it is that my insurance is paying for most of it.  I had wanted to go to this particular clinic a few years ago, but I had different insurance at the time.  So, I feel as though if this assessment doesn’t show a final result of ADD or possible learning disability then maybe I can just move on with my life… or maybe I will once again go back to thinking that I really am stupid.  I can’t bear to think like that.

explosive/inflexible children?

So, I’m not only dealing with my own issues of ADD, anxiety, depression and a possible learning disability, but now my husband and I have finally made a decision to have our oldest child evaluated for Explosive/Inflexible behavior.  We have an appointment with a psychologist next week.  This has been going on since she was about 1.5 years old and we always figured she’d grow out of it.  You know, the terrible twos and threes?  We kept saying, “by the time she’s 4 it will get better”.  Then when she turned four we started saying “well, by the time she’s 5 it will get better”.  She is now 6.5 and things have not gotten better.

On a daily basis we almost feel as though we walk on eggshells trying to avoid power struggles, her very low frustration tolerance, and her emotional meltdowns, but nonetheless they are still happening.  She and her little brother fight constantly and it’s often physical.  I am constantly aware that we need to be very close by when they are together.  We are very hands-on parents and restrict TV watching, feed our children whole grain foods, fruits and veggies, read with them daily… just trying to do all the right things.  She gets herself so emotionally revved-up that her immune system isn’t as strong as most average kids – getting colds and many ear infections over the last few years.  She just plain wears herself out with all of the emotional outbursts, angry rants and inflexibility if things don’t go her way.  And trust me, we do say “no”  to our kids – quite often actually.  

I am not a meek or mild person.  I consider myself low maintenance when it comes to life and I’m very down to earth so I do not see our family life as anything “average” if there even IS an “average” or typical family life.  These emotional ups and downs from hour to hour or minute to minute leave us all tense and stressed and what bothers me the most is how it’s affecting our other child – our little guy who is only 3.  He’s starting to do this nervous little thing when you hold him where he grabs a hold of your shirt between his thumb and pointer finger and rolls it back and forth.  Sometimes if he’s not being held, he’ll do it to his own shirt.  Needless to say, it all adds to my daily anxiety issues too.

The beautiful side of this child is her sweetness and amazing creativity – she’s an adorable little girl too and smart as a whip.  She is equally sweet as she is angry and it often feels as though it’s one or the other – no middle-of-the-road.  Oftentimes after an emotional meltdown if I talk with her after the “storm” has passed, she won’t even remember what she was raging about.  I always thought that was strange.

I want her to succeed in life, and by no means do I mean making lots of money.  My idea of succeeding for her and for the rest of us is having meaningful relationships with others and having friends that treat her well and being able to reach out to others if she is in need.  I can only imagine that things MAY NOT get better – and I’m thinking ahead to puberty and it really scares me to think that this may get worse.

I stumbled upon this website the other night while we were researching Explosive/Inflexible children and it has some really great information if anyone needs it.  The Foundation for Children with Behavioral Challenges.  

There is a tool that is also explained on this site called CPS (Collaborative Problem Solving) that you can use with explosive/inflexible children.  I need to read up more about it, but I will do anything it takes to bring more peace and harmony to our little family.  Nobody should have to live like this.

better for now…

as the day goes on, i am feeling better, not so sad.

i think my kids are a good distraction to all my thoughts on my current mental state.  We had a fun afternoon swimming and playing UNO.

 

 

sad

just sad today, i can’t pinpoint why

dropped my kids off at their summer activities this morning

went to a obgyn appointment and almost made myself sick with anxiety just sitting waiting for the doc to come in because last time i had a vaso-vagal response (yeah, not fun)

bought a cup of coffee 

but i’m still sad – cried all the way home from the doctor’s

i think i need to talk to someone about getting a low dosage of anti-depressants, i don’t know if i can manage this by myself

 

i’m tired too